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Thread: Good Mojo/Healing Wishes to Jerome

  1. #51
    Owner Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg's Avatar

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    Thanks again to everyone and their positive thoughts for me. 9 days ago the surgeon performed an I&D (incision and drain). Since then the swelling and pain have greatly diminished. I'm not 100%, but I am in much better shape than I was for 5+ weeks that were pure misery.

  2. #52
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    Glad to hear that, Jerome. Hoping you’re back to 100% and pain free soon.
    Looking for Mister Slaughter S/L #78

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    That is awesome news. As someone who has lived with pain for years, finally getting rid of it is such a relief. Really glad you are on the mend.

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    On the mend!
    Great news...

  5. #55
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    I love good news!!

    John

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    Quote Originally Posted by Randall Flagg View Post
    Thanks again to everyone and their positive thoughts for me. 9 days ago the surgeon performed an I&D (incision and drain). Since then the swelling and pain have greatly diminished. I'm not 100%, but I am in much better shape than I was for 5+ weeks that were pure misery.
    Late to the party as usual but glad to hear you're feeling much better. Hopefully you're on the mend for good.
    "Any area of collecting only becomes really worth it when shared with like minded people"-Alec aka Anonymous

  7. #57
    Owner Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg's Avatar

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    Still crawling. 3 steps forward, 2.75 steps back. See the DR. on Tuesday, and I'm going to push for a more aggressive approach. I appreciate being in peoples thoughts.

  8. #58
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    Quote Originally Posted by Randall Flagg View Post
    Still crawling. 3 steps forward, 2.75 steps back. See the DR. on Tuesday, and I'm going to push for a more aggressive approach. I appreciate being in peoples thoughts.
    You definitely have to take an active approach to your own wellbeing. Seems like a lot healthcare professionals are happy to just let ya limp along status quo. Continued best wishes and keep us posted.
    "Any area of collecting only becomes really worth it when shared with like minded people"-Alec aka Anonymous

  9. #59
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    Quote Originally Posted by Randall Flagg View Post
    Still crawling. 3 steps forward, 2.75 steps back. See the DR. on Tuesday, and I'm going to push for a more aggressive approach. I appreciate being in peoples thoughts.
    Hang in there, Jerome. Glad to hear your recovery is progressing.
    "...that Siren which called and sang and promised so much and gave, after all, so little." ~ Ray Bradbury

  10. #60
    Owner Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg's Avatar

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    Just to help me heal. Someone hacked/spoofed, my email acount and sent out a few thousand malicious content emails.

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    Quote Originally Posted by Randall Flagg View Post
    Just to help me heal. Someone hacked/spoofed, my email acount and sent out a few thousand malicious content emails.
    Yeah, I got one. I just deleted it.

    John

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    Some of these hackers, spoofers are really good. Sometimes it's hard to tell what's real and not.

  13. #63
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    Spam folder snagged mine.

    Quote Originally Posted by jhanic View Post
    Quote Originally Posted by Randall Flagg View Post
    Just to help me heal. Someone hacked/spoofed, my email acount and sent out a few thousand malicious content emails.
    Yeah, I got one. I just deleted it.

    John

  14. #64
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    Quote Originally Posted by Ben Staad View Post
    Spam folder snagged mine.

    Quote Originally Posted by jhanic View Post
    Quote Originally Posted by Randall Flagg View Post
    Just to help me heal. Someone hacked/spoofed, my email acount and sent out a few thousand malicious content emails.
    Yeah, I got one. I just deleted it.

    John
    Got it. Deleted it.
    "...that Siren which called and sang and promised so much and gave, after all, so little." ~ Ray Bradbury

  15. #65
    Owner Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg received positive rep from Stephen King Randall Flagg's Avatar

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    Just an update on my saga. In August 2018, I had surgery to remove the bulk of the mesh from my hernia surgery. The complications still continued. In late December 2018, I had another surgery to remove every bit of the mesh that was left (5 hours on the table, and 5 days in the hospital).
    I continued to have drainage from 3 holes in my lower left abdomen, as well as from the original hernia incision. The new theory was that because of my Crohn's disease, I had developed several fistulas from my colon that were draining from my abdomen. Specifically, 3 fistulas, and the incision. The conclusive evidence was when I had a barium contrast and ultrasound. The moment the contrast was injected into my colon, the barium immediately leaked from the 3 holes, and incision. Voila! After 10 months they figured out why.


    I am now seeing IBD experts at UCSF medical center. They intend to put me on Stelara in the hopes that it will put my Chron's in "remission", and that all the the leaking holes will repair themselves, or that surgery (a fistulectomy) would work.


    It really has been, and continues to be a painful, trying time, but I just wake up every day and persevere.

  16. #66
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    Best wishes, Jerome!

    I think the misery and complications that often come with Crohn's are under-recognized. It can be a pretty debilitating disease. I have a good friend who couldn't travel more than a 20-minute distance from her house unless she could be sure that she would have immediate access to a bathroom. She was consistently anemic. But then she started Stelara and her health and quality of life vastly improved. I hope the same proves true for you!
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  17. #67
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    Sorry to hear your still having problems Jerome.
    For some reason I thought things were much better now.. Good luck.
    BTW, offer is still open.


    “The battle between good and evil is endlessly fascinating because we are participants every day.” - Stephen King

  18. #68
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    Continuing to send Prayers, good vibes, and thoughts your way Jerome.

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  19. #69
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    Prayers and well wishes being sent your way Jerome. Please take care of yourself physically and mentally during this.
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  20. #70
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    Sorry to hear it, Jerome, but hopefully now that they understand the cause, some relief may be forthcoming. Sending hopeful thoughts your way.
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  21. #71
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    Best wishes to you, Jerome. Hang in there!

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    Wishing you a speedy recovery Jerome.
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  23. #73
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    Wishing you the best, Jerome. Now that they’ve figured it out, I hope this new medication does the trick.
    "...that Siren which called and sang and promised so much and gave, after all, so little." ~ Ray Bradbury

  24. #74
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    Quote Originally Posted by Randall Flagg View Post
    Just an update on my saga. In August 2018, I had surgery to remove the bulk of the mesh from my hernia surgery. The complications still continued. In late December 2018, I had another surgery to remove every bit of the mesh that was left (5 hours on the table, and 5 days in the hospital).
    I continued to have drainage from 3 holes in my lower left abdomen, as well as from the original hernia incision. The new theory was that because of my Crohn's disease, I had developed several fistulas from my colon that were draining from my abdomen. Specifically, 3 fistulas, and the incision. The conclusive evidence was when I had a barium contrast and ultrasound. The moment the contrast was injected into my colon, the barium immediately leaked from the 3 holes, and incision. Voila! After 10 months they figured out why.


    I am now seeing IBD experts at UCSF medical center. They intend to put me on Stelara in the hopes that it will put my Chron's in "remission", and that all the the leaking holes will repair themselves, or that surgery (a fistulectomy) would work.


    It really has been, and continues to be a painful, trying time, but I just wake up every day and persevere.

    Wishing you the best Jerome. Hope that everything will be fine!
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    CLUB STEPHEN KING (french website about STEPHEN KING, since 1992) : on : Facebook | Twitter
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  25. #75
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    Glad to hear that they at least figured it out and can take steps to resolve it. Sometimes the ‘not knowing’ is practically the worst thing with health related matters. Hopefully the Stelara will do the trick.
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