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Type: Posts; User: Randall Flagg

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    Thanks for all of the positive Mojo sent my way....

    Thanks for all of the positive Mojo sent my way. I'm hanging in there, and will persevere.
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    I'm told that the reason I have lymphedema is...

    I'm told that the reason I have lymphedema is that the cumulative trauma from abdominal and pelvic surgeries as well as radiation for cancer has damaged some of my lymphatic system beyond repair, ...
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    I'm currently waiting for approval from Aetna to...

    I'm currently waiting for approval from Aetna to get the compression therapy machinery, etc.
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    After months of tests, numerous doctors, and way...

    After months of tests, numerous doctors, and way too much money, I finally have a diagnosis for my left leg peripheral edema.

    Lymphedema.

    Causation was numerous invasive surgeries of my...
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    I'm well enough to try and attend the SDCC. I did...

    I'm well enough to try and attend the SDCC. I did however need to rent a motorized handicap cart to get around. Thankfully they were available, and very moderately priced.
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    Feeling OK. Dealing with some swelling in my left...

    Feeling OK. Dealing with some swelling in my left ankle/foot.
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    There are several important things missing, and...

    There are several important things missing, and the dates are all wrong as I'm changing Primary care, but this gives members a rough idea of what I'm going through:

    ...
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    I'm hanging on there. My latest fun thing is...

    I'm hanging on there. My latest fun thing is peripheral edema (swelling of lower legs). They have me on diuretics and it's helping a bit.
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    Not to create a stir, but this may be my last...

    Not to create a stir, but this may be my last hurrah. If anyone has noticed, I haven't even put up a thread/contribute button, to keep the site ad free and vibrant.

    I spend out of pocket over...
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    It's been a rough couple of months. In early...

    It's been a rough couple of months. In early November, following a bad slip and fall, I fractured my sacroiliac (sacrum). It was a very painful disabling injury. For 10 days I was bed ridden, then...
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    Ok. They removed the 22 staples from my arm...

    Ok.
    They removed the 22 staples from my arm today.
    Taking a quick 3 day vacation back on San Diego starting tomorrow.
    Going there for a Giants vs. PADRES baseball game.
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    Stage one of the surgery to create a fistula on...

    Stage one of the surgery to create a fistula on the inside of my upper arm to have a port for possible future dialysis. 22 staples.

    Warning! not for the squeamish.

    ...
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    Tomorrow morning I go in for outpatient surgery...

    Tomorrow morning I go in for outpatient surgery for a Basilic Cephalic Transposition-Stage 1 procedure.
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    Much better thanks.

    Much better thanks.
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    Had to have two units of blood transfusion today...

    Had to have two units of blood transfusion today due to very low hemoglobin.

    The good news is I am blood type O- thus a universal donor. Unfortunately, today I am a receiver. One day when I'm...
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    It's embarrassing to say, but on Friday I fell...

    It's embarrassing to say, but on Friday I fell face first (literally) onto asphalt paving. I spent a day in the hospital. I suffered severe facial contusions and bleeding. To add insult to injury,...
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    Still struggling with kidney issues. Had to...

    Still struggling with kidney issues. Had to cancel an upcoming Hawaii trip due to light headedness, and nausea.
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    I am not at the point of dialysis or transplant!...

    I am not at the point of dialysis or transplant!

    I am also allowed 2 beers a day. My kidney problems are not alcohol related, they are genetic, and a predisposition for dehydration.
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    Not yet.

    Not yet.
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    Unfortunately, I have been diagnosed with Stage 5...

    Unfortunately, I have been diagnosed with Stage 5 kidney damage. My creatinine level is 7.6 (normal range 0.70-1.25). Not good news at all.:frown:
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